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Joined: April 22, 2013
My son is 16. He has had Crohn's Disease for 5 years now. He has suffered terribly because each therapy or treatment seems to fail him. We are all trying to be strong for him through this difficult time. He is experiencing another exacerbation, and we have exhausted nearly all treatment options. My daughter is 9 and is absolutely heartbroken that her brother has to be in pain. She cleans the bathroom so he "wont catch any germs", she makes sure he drinks water and reminds him to take his medicine. She gives him cold packs for his head and warm packs for his stomach while he is lying on the couch or in bed. She even wrote a letter to Santa last year asking for her brother's Crohns to be taken away. She prays every night, and I just had to finish putting her to bed as she cried herself to sleep. Being heartbroken myself about my son, how do I support my daughter in dealing with her brother's diagnosis and her heartbreak for what he has to go through? She is just now realizing the permanency of the disease, and I was wondering how other families deal with this dilemma. Thanks!
Joined: April 15, 2013
Joined: September 09, 2009
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