What’s available to treat IBD and what you should know about these medications.
Free educational webcasts on a variety of topics from disease management to diet.
Learn about IBD treatments, diet, complications, and quality of life through videos, interactive quizzes, and more on the I'll Be Determined disease management website.
Be an active part of the search for cures; participate in a clinical trial of experimental treatments.
Use GI Buddy to keep a daily log of your disease and see trends over time to share with your healthcare team.
1 in 200 Americans struggle with IBD and your contribution can help find cures and new treatments. Please give today!
Learn about CCFA’s mission: to cure Crohn'sdisease and ulcerative colitis, and to improve the quality of life of those affected.
All dates and times given in Eastern Standard Time.
Topics will be archived after 21 days of inactivity. Click on archive topics to view past topics and posts.
Joined: April 22, 2013
My son is 16. He has had Crohn's Disease for 5 years now. He has suffered terribly because each therapy or treatment seems to fail him. We are all trying to be strong for him through this difficult time. He is experiencing another exacerbation, and we have exhausted nearly all treatment options. My daughter is 9 and is absolutely heartbroken that her brother has to be in pain. She cleans the bathroom so he "wont catch any germs", she makes sure he drinks water and reminds him to take his medicine. She gives him cold packs for his head and warm packs for his stomach while he is lying on the couch or in bed. She even wrote a letter to Santa last year asking for her brother's Crohns to be taken away. She prays every night, and I just had to finish putting her to bed as she cried herself to sleep. Being heartbroken myself about my son, how do I support my daughter in dealing with her brother's diagnosis and her heartbreak for what he has to go through? She is just now realizing the permanency of the disease, and I was wondering how other families deal with this dilemma. Thanks!
Joined: April 15, 2013
Joined: September 09, 2009
Search Board Message: