Parents and Caregivers

2nd child diagnosed with UC

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mom of 2 w uc

Joined: March 21, 2013

Posted: Mar 21, 2013 10:51 PM
What a week!  12 years ago our 2nd child was diagnosed with UC, looong story short, she is in remission and is now 22 years old.

Just a couple of weeks ago our 3rd child presented with symptoms, and this week was diagnosed with UC, he is 18 years old and miserable.  I see very little info on the net about sibs dealing with this disease.

Thankfully they are helping each other but I  am wondering about other families, what changes have been made, what resources are now available, and how to stop this disease from ravaging my family again.  The doctors told us only 10% of families have a sib but I am seeing figures on the net as high as 20% - way too high for a mom!
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lizzies mom

Joined: September 09, 2009

Posted: Mar 23, 2013 11:15 AM
 Reply posted for mom of 2 w uc.

It defininitely runs in families.   My 2nd daughter had been sick from infancy, misdiagnosed a few times, then finally dx @ 4.   Very, very young.   At the time the pedi gi asked me, who else in the family has CD.  I didn't know of anyone.   It wasn't until 3 years ago when I was dx at 40!   Yup, after a lifetime of treating symptoms.  A few years back the gi did work up my 1st daughter because she too is very slender, but thankfully all was ok.  As a family we have accepted IBD and it has become part of our family.  We participate in CCFA's walks, try to raise funds throughout the year and Liz has gone to Camp Oasis for the last 4 summers.   She is in remission, takes her meds, supplements and we watch what we eat.  

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