Hi Everyone,Two years ago I had alot of severe abdominal pain that landed me in for a colonoscopy. I was informed that I had a lot of ulcers in my stomach lining and I had colitis. Then a few days later they said I had crohns but later went back to saying it was "just colitis". I was put on prednisone for a few weeks and asacol (6 times a day). It eventually cleared up and I was back to a normal life. Back in December I had a flare-up and it took over me- severe abdominal pain was the worst sympton and I went to a doctor who put me back on asacol and prednisone. So here I am 6 months later and in extreme pain- worse than ever. Very weak, nauseas, severe joint pain esp in knees, and extreme abdomen pain- blood work and another colonoscopy...I now have Crohns. I am on prednisone for 6 weeks and Asacol for life I think. I am not happy about the prednisone- gaining weight is not something I want to worry about or can afford to do. The asacol is expensive even with my insurance. I have missed work all week and using up my vacation time- I am a single mom and cant afford to be out. I believe the chemo I had 7 years ago caused this (Vinblastine causes GI problems years down the road) and so I am very angry and depressed about all of this. Not until you go through this do you truly know what it is like. I feel like no-one around me understands me.
Hi Everyone,Two years ago I had alot of severe abdominal pain that landed me in for a colonoscopy. I was informed that I had a lot of ulcers in my stomach lining and I had colitis. Then a few days later they said I had crohns but later went back to saying it was "just colitis". I was put on prednisone for a few weeks and asacol (6 times a day). It eventually cleared up and I was back to a normal life. Back in December I had a flare-up and it took over me- severe abdominal pain was the worst sympton and I went to a doctor who put me back on asacol and prednisone. So here I am 6 months later and in extreme pain- worse than ever. Very weak, nauseas, severe joint pain esp in knees, and extreme abdomen pain- blood work and another colonoscopy...I now have Crohns.
I am on prednisone for 6 weeks and Asacol for life I think. I am not happy about the prednisone- gaining weight is not something I want to worry about or can afford to do. The asacol is expensive even with my insurance. I have missed work all week and using up my vacation time- I am a single mom and cant afford to be out. I believe the chemo I had 7 years ago caused this (Vinblastine causes GI problems years down the road) and so I am very angry and depressed about all of this. Not until you go through this do you truly know what it is like. I feel like no-one around me understands me.
