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Not sure what to do


Mon, January 29, 2024 2:42 PM

I have severe inflammation in my upper gut and was diagnosed with gastritis and mast cell activation and ulcers 1.5 yr ago.  Biopsies were negative for h pylori but positive for mycoplasma, mast cells and a culture of my duodenal fluid showed high levels of staph bacteria and low levels of dientamoeba fragilis although pathology was neg for parasitic infection.  Stool showed low levels of blasto.  ALCA and AMCA levels were elevated and gASCA and ACCA were normal.  intrinsic factor antibody was elevated. 

 
For 5 years I have been dealing with severe gastritis which was triggered by taking a probiotic.  Since then my gut health has deteriorated and I lost all foods.  for 3 yrs i have been eating 4 foods and cant get anything else into my gut even tiny amounts.  also can't tolerate supplements or meds. I get violent stomach flare ups and sporadic intestinal cramping. I have zero quality of life and am suffering daily.  4 of my doctors want to put me on xolair and start me at a very low dose (5mg) but i am afraid of this drug and concerned that it may make me even more reactive and inflamed . however i have no alternatives as i cant tolerate any oral meds. I tried cromolyn ketotifen and LDN and they all made me worse.  I am at a loss now and am not sure if i should try Xolair or consider a TNF blocker but again anything oral may just flare me up.  appreciate any support thanks 

FPO Hypospadus
Joined Jan 29, 2024

Thu, February 01, 2024 6:41 AM

Reply posted for Hypospadus.

anyone?

FPO Hypospadus
Joined Jan 29, 2024

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