Community Forum

Have a question, or want to share your own tips and experiences? Join the discussion in the community forum. You must be registered to participate. Our forums are moderated by Crohn's & Colitis Foundation staff to facilitate a safe environment.

Starting Stelara


Sun, February 19, 2017 10:47 PM

Hi everyone. I get my first dose of Stelara via IV this week, I was wondering if anyone had experiences they could share. I'm pretty nervous about taking it-mostly because I hate IVs but, any feedback would be great!

FPO npingel
Joined Feb 19, 2017

Mon, July 24, 2017 9:25 AM

Reply posted for npingel.

Hi- I'm starting Stelara end of this week. Can you tell me how you felt after the IV infusion and how things are going now. I have a very important event the day after the infusion and I'm already nervous and trying not to stress. Any info you can share would be helpful. I hope you're feeling much better and that Stelara is giving you relief! 

FPO marecare
Joined Dec 3, 2014

Fri, April 21, 2017 11:33 AM

Reply posted for racheljohnnie.

How was your experience

FPO Myers1994
Joined Apr 21, 2017

Fri, April 21, 2017 11:32 AM

Reply posted for npingel.

They are trying to
put  my son on stelera for crohnes.
How was your experience??

FPO Myers1994
Joined Apr 21, 2017

Wed, April 19, 2017 9:49 PM

Reply posted for npingel.

Last year I started remicade with little to no results. So far Ive had 3 Stelara injections and im already starting to see a big difference in my symptoms. I wish you the best of luck!

FPO racheljohnnie
Joined Mar 3, 2017

Wed, March 29, 2017 2:21 PM

Reply posted for npingel.

I start Stelara tomorrow. I'm sorta desperate and am hoping this works. 

FPO kmcm1412
Joined Mar 29, 2017

Thu, March 09, 2017 1:12 PM

 Reply posted for npingel.

HI! I also recently started Stelara and am looking for others who have started it and how it is working for them. So far it's been about a month and I've tapered from the steroids, but my symptoms have returned, so going back on a low does of steriods until the Stelara kicks in. Anyone else share their expreiences? 

FPO je1976
Joined May 13, 2008

Related Topics

Remicade...time to move o...
Author Image bethw
Joined Jan 23, 2017

Hi all, I was diagnosed with Crohns 19 years ago b....

read more

How is Crohn's disease di...
Author Image manish
Joined Mar 10, 2017

Your doctor will ask you about your symptoms and d....

read more

Alternative Treatments
Author Image harleyh88
Joined Jun 18, 2017

I've been on Remicade for about 18 months. I s....

read more