Our Stories

These special people inspire us with laughter and wisdom. Read their personal stories — or share one of your own.


Story Image
In 1979 I was diagnosed with Crohn's Disease.  I was told my condition was severe and I needed surgery immediately.  I was to weak to speak up for myself so, my older sister spoke for me.  She told the doctor I was too young and was no going to have the operation.  The doctor then said, I had to take prednisone pills for the rest of my life, don't think about having children because they would be deformed, due to my medication, and do not take on any stressful jobs because this would trigger the crohn's.  I was not happy with the side -effects of the medication given.  I researched the pros and cons of taking the medication in a medical dictionary and decided this medication was detrimental to my health.  I went to another doctor and told him I wanted to be weaned off the steroids.  He gradually got me off the steroids.  After this, I have NEVER had another crohn's disease attack.  Now, it has been 38 years since I took steroids, and I am doing just fine.  Everything the first doctor told me, I did the opposite.  I got married and had a perfectly healthy son.  Years later, my husband and I got our foster care license and have fostered over 30+ children.  I wrote a book called Against All Odds, Living Proof of an Overcomer by:  Carol O. Johnson.  This  book will inspire you!
Story Author Image

Carol Johnson
Joined Mar 11, 2017
Location: Fairfield, California
Diagnosed: 1979

Related Stories

Sharing My Story

Author Image manish
Joined Mar 10, 2017
I was diagnosed with CD when I was 16 years old and have been finding a way to deal with multiple surgeries, treatments,... read more

Becoming OSTOmistic

Author Image jtrosclair
Joined May 3, 2017
Following a colonoscopy on the morning of December 22, 2015, I awoke from an anesthetic-induced haze to hear my mother... read more

Young with Crohns

Author Image
Hey guys! My name is Paige, I'm 20 years old and I have Crohn's disease. I was diagnosed, after several hospital... read more