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Rough seas

Story Image
All the other 19 year old girls around me were learning to live on their own, going to college and falling in love.I was diagnosed with Crohns Disease.Struggling to stay afloat among endless Dr bills. Symptoms didnt allow me to sit in classrooms. Ive worked in food service for 18 years now.Then, denied my health insurance for preexisting conditions, I went untreated for the next 8 years.May of 2010 Drs found an abscess the size of a grapefruit in my abdomen.Crohns was trying to win. We wouldnt let it. I needed an emergency BOWEL RESECTION. I lost nearly a foot of intestine that day.I started regular IV treatments (Remicade) after the surgery. That medicine has become the only thing keeping the Crohns at bay.I was in Remission for the first time!My son Brennan was born in May of 2012!Drs stopped my treatments in fear of harming the baby. The Crohns flaired. Prednisone (Steroids) and back on Remicade, my life jacket.It took 6 months to get off the steroids.This happened again in 2013 when we moved across the country. My Mother-in-law was diagnosed with Dementia at age 55 and I lost my insurance once again.I have been letting this disease hold me back. The fear of losing my insurance, unable to afford my IV treatments.Remicade sustains me. Its my safe harbor. But its only prolonging the inevitable. Will this buoy always be here?I continue to be a customer to Big Pharma and will always be that 19 year old girl trying to stay afloat in a sea of uncertainty.
Story Author Image

Joined Jul 9, 2017
Diagnosed: 2001

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