I'm 29 years old. For as long as I can remember I've had abdominal issues. I even went through extensive testing and treatments when I was under 10 years old, to no avail. I had a "reprieve" for lack of a better word from 10ish to 18. Then symptoms started again. Crohn's runs in my family, my mother had 11 surgeries in 1 year when I was 3 for Crohn's and was then only alive thanks to a TPN. I lost her 4 years ago now. I was finally "formally" diagnosed with ulcerative colitis at 18 years old. After 3 trips to the emergency room in so much pain I couldn't even sign for myself.I was prescribed Asacol, which did nothing for me and went out the same way it went in, my doctors dismissed it as " its just the shell of the pill passing through," similar to corn and what not. I was still in constant pain. At 19 I was diagnosed with HIV, it was a dark time for me. I survived that ordeal, and eventually came around enough to find a different doctor. He put me on Pentasa, which also did nothing for me. I've been on and off meds for HIV for 10 years now due to how expensive they are. However, I have not been on meds for Crohn's for a long while. You see its very hard to be on meds for both as the prescribing aim for each is different. Crohn's Iv'e been told requires steroidal type medications, that usually conflict with the anti-retroviral medications needed for HIV, neither of which are cheap. The never ending doubt and depression brought on by both illnesses is debilitating at best. And to now be at a point where I cannot afford medications for either disease, and have been passing blood for a month and a half, and in pain for at least 3 weeks since I was on a high dose of prednisone for acute tinnitus. I'm at a loss for what to do at this point. Just trying to survive until November 10th to see yet another new doctor...Dealing with Crohn's and HIV leaves one feeling totally alone.
Joined Oct 29, 2017
Location: Littleton, Colorado Diagnosed: 2015
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